The Romanian Epilepsy Patients' Association (ASPERO) will mark Purple Day - the World Epilepsy Awareness Day (26 March) - with a series of activities dedicated to patients and the general public, including an informative webinar and a storytelling campaign highlighting real-life experiences of living with epilepsy.
"Through these initiatives, the ASPERO aims to reduce stigma, increase awareness and build bridges of understanding at a time when patients' voices need to be heard more clearly than ever," a release of the Association informed.
According to the National Institute of Public Health (INSP) data, 131,550 people with epilepsy were registered in Romania in 2024, of whom 17,132 were newly diagnosed. The ratio between women and men is almost equal, with a slightly higher percentage among women (56%). However, the ASPERO estimates that the actual number of people affected is close to 400,000.
"People with epilepsy, whether children or adults, face multiple challenges that affect both their health and daily life. Beyond the difficulty of controlling seizures and the side effects of treatment, they often live with anxiety, uncertainty and fear of stigma. Children may encounter problems with school integration and learning difficulties, while adults frequently face limitations to their independence and barriers in professional life. At the same time, the lack of public awareness and prejudice contribute to social isolation and the emotional burden often extends to families," ASPERO Executive Director Ileana Stefan said, as quoted in the release.
Neurologist Andrei Daneasa from Elias University Emergency Hospital underscored that, in recent decades, diagnostic and treatment methods have advanced significantly, offering patients more effective and personalised options.
"It is vital that parents and children are informed about the diversity of epilepsy types and the available treatment options, so they can make informed decisions. Encouraging social participation and normal activities also helps develop children's skills and reduce stigma. The close collaboration between the medical team, parents and children creates a safe and supportive environment, facilitating adaptation and promoting a good quality of life for those affected by epilepsy," according to George Pescaru, pediatric neurologist at "Prof. Dr. Alexandru Obregia" Clinical Psychiatry Hospital.
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